Currently children who are newly diagnosed with NF1 with significant complications (complex NF1) are cared for through the Children’s Hospital at Westmead specialist clinic. Children who are newly diagnosed with NF1 and do not have complications which require tertiary services (non-complex NF1) are referred to local healthcare providers for ongoing surveillance. CHW has developed a new model of care which will encourage all families with a new diagnosis of “non- complex” NF1 to attend a telehealth “new diagnosis” appointment with our specialist nurse and genetic counsellor. Their local paediatrician will also be invited to attend, to ensure that local providers are upskilled and empowered to manage children with NF1 as close to home as possible.